– An action research evaluation of the creativity, resilience, enablement and wellbeing (CREW) programme facilitated by Outsider Gallery London

Rachel Jane Liebert Lecturer, School of Psychology, University of East London

With Nana Dameah Acheampong-Sah, Mike Chase Janet Chimwayange, Hannah Gabriela French, Daria Anna Janik, Nick Jobber, Laura McGrath, Carina Gomes Monteiro, Charles Chitoo Nnakwue,Tehseen Noorani, Kayleigh Rashbrook and Oriana Tekleab

Published in JHH15.3 – Social Prescribing

My decolonising and feminist commitments have emerged from my collaborations with community groups in Aotearoa New Zealand, New York and London toward mad, racial, gender and educational justice.These collaborations have also led me down an at times otherworldly path of participatory, embodied and creative methods in my research and teaching, as put forth in my forthcoming book with Routledge, Psycurity: Colonialism, Paranoia and the War on Imagination.

Everyone deals with their mental health very individually, so two people with bipolar would be two very different people… and you throw creativity into the mix with that as well and it’s very difficult to determine, “Right that’s your box, that’s your box, that’s your box and that ticks it all.

Ben, CREW facilitator

In our evaluation of CREW we found it makes a space for participants to experience expression, imagination and collectivity, and for service[1]providers and community members to experience and appreciate community, creativity and healing. It is an empowering, de-stigmatising and transformative programme with the potential to make a remarkable therapeutic and social impact. It should be enabled to continue.

When describing the aims and process of CREW (creativity, resilience, enablement and wellbeing) in an interview facilitators Ben Wakeling and Jon Hall spoke of four core elements. These four elements – a responsive space, the expression of self, relationality and support and the telling of stories – enable CREW to sustain an ethical and engaged practice without imposing a standardised ‘model’ that would otherwise threaten the therapeutic and innovative essence of the programme. The evaluation that follows sought to explore how this approach affected individuals, services and the community.

Three groups of adults and young people chose to participate in the programme. Each was guided through weekly, one-hour one-to-one and group sessions for 10 weeks before being invited to showcase their art and music to the community through an evening of exhibitions and performances.

In our assessment we used a mixed-methods ethnographic action research evaluation to collect both quantitative and qualitative data. We simultaneously participated in the programme and reflecting on how to improve the evaluation process (Kagan et al, 2011; Cleary et al, 2016; Teo, 2010). Our final report drew on data collected from 75 post-session responses from CREW participants, 11 interviews with CREW participants and 113 reflections from service providers and community members who attended the showcases. The findings focused on organising this data into recurring themes (Braun and Clarke, 2006), summarised below, alongside exemplar quotes from participants, service providers and community members. A concerted effort has been made to prioritise these voices over our own.

How are individuals affected by their experiences in CREW?

Expression

Poetry has a very deep power, letting you see into your sub-conscious mind and real feelings

CREW participant

To be able to sit down with a piano, just mess about with some chords and create something that sounds like a song, that made my confidence soar.

CREW participant

I have drawn a lot of things that I am really proud of.

CREW participant

It just helped me as a person really. I felt more confident with myself and I felt more confident with my creativity.

CREW Participant

What I’ve enjoyed, I’m guessing that they enjoyed, a lot is just the freedom to actually musically express yourself.

CREW participant

Like you don’t have to be an artist to make art. It’s just self-expression really.

CREW participant

It was a nice release from a lot of tension.

CREW participant

Other people like me with creative minds who have been through some stress and are tryna harness the creativity as opposed to let the creativity take over them.

CREW participant

It’s just so accessible and comfortable and it’s just comforting really. If anyone is like, ‘I need to do something, feeling shit’, come here and you’ll feel way better.

CREW participant

I had absolutely nothing to do and basically CREW gave me a way to enjoy my time. And to be freer really. It doesn’t matter, it’s just enjoy your time while you are here, it doesn’t matter, don’t worry about small stuff, don’t worry about this that and the other. Don’t lose hope really.

CREW participant

First, CREW made a space for participants to experience expression. The creative process led to feelings of confidence, pride and enjoyment along with a sense of productivity and accomplishment. It afforded the opportunity for self-expression within a context of clinically-led services that might otherwise limit experiences. In turn, participants spoke powerfully about the programme’s capacity to positively intervene on, if not prevent, their feelings of distress and madness.

How are services and the community affected by the work of CREW?

Community

The whole thing is so brilliant!

Community member

It makes me want to become more involved with these kind of events.

Community member

How good it is to be a person and how a genuinely functioning community exists

Community member

Life! How hard it is until you meet the right people to help see you through.’

Community member

Made me aware of the importance of recognising and accepting any mental health.

Community member

How important it is to publicly celebrate recovery. How important it is to have lots of people alongside you, do it with you.’

Community member

How great we could be as a society, if we all embraced events such as The Outsiders.’

Community member

The power of bringing people ‘inside’, the magic of love and attention. I LOVE the ‘normalness’ of this work as an intervention.’

Community member

Fourth, CREW made a space for service providers and community members to experience and appreciate community. People expressed immense enjoyment during the CREW showcases and spoke of a supportive atmos[1]phere that allowed them to reflect on the importance of community in mental health and in general. In turn they engaged their own social responsibility as well as the value of difference and diversity – especially with regard to the humanity of experiences of distress and madness.

Creativity

It was incredible how much talent was on show that would have otherwise gone unnoticed.’

Community member

I just find it really astounding to keep being amazed by the music, by the poetry, by the art and also the fact that I’d stay here for 3 hours and talk to people about mental health, about art.

Community member

How important &vital creativity + self-expression is for wellbeing – for individuals and communities and the whole world!’

Community member

How powerful it is to create our way out of mental distress.’

Community member

Fifth, CREW made a space for service providers and community members to experience and appreciate creativity. People consistently made references to the quality of the art and music on show, thus engaging with the artists and musicians as artists and musicians. This interrupts the focus on distress and madness that can otherwise dominate perceptions of people who use mental health services.

Healing

Got me straight in the heart.

 Community member

Thank you for this, made me reflect, feel very emotional and drained me of a lot of stuffs I need to get rid of, it was amazing!

Community member

Healing

Community member

Feelings of quiet reflection.

Community member

…it makes you realise that mental health is one of those things that isn’t talked about a lot, but actually it’s out there, it’s everywhere, and lots of people you might know have gone through it.

Community member

Bravery. How damn scared so many of us are to show vulnerability or anything raw and real.

Community member

I am really proud of the clients that I referred because it’s really changed them.

Service provider

I’m just hoping that this sort of approach to mental ill health can be mainstreamed.

Service provider

Sixth, CREW made a space for service providers and community members to experience and appreciate healing. People’s connections with, and reflections on, the art and music suggested that the CREW showcase enabled them to not just witness but feel things that might usually be unspoken in or silenced by society. In turn, they expressed a recurring respect for the artists and musicians while simultaneously making them reflect on their own relationship to distress and madness. It followed that people commented on the need for CREW to continue as a unique alternative to clinically-led services, thought to not only improve but save lives while simultaneously promoting and relieving the other NHS providers.

The beauty of being an ‘outsider’

Together, the above findings suggest that CREW participants:

• experience confidence, pride and enjoyment, including a sense of accomplishment
• feel free to, and comfortable with, expressing themselves
• are able to see their own and each other’s capacity and potential
• come to know that their voice matters
• make friends, support each other, work together and feel part of a collective
• happily become actively involved in the process.

In addition, the findings suggest that through their encounter with CREW service providers and community members:

• have their expectations challenged
• commit to community
• value diversity
• see people as more than their diagnoses
• respect people who experience distress and madness
• witness and feel unspoken or silenced experiences
• do not ‘other’ people who experience distress and madness.

These lists suggest that CREW offers something distinct from clinically-led services. CREW creates an alternative space where participants are invited to explore and explode who they are and could be, rather than accepting a medical account of their experiences. Moreover, CREW creates a collective space that invites people to dialogue across differences; to see that things do not have to be ‘this way’; to imagine that another world is possible and to collectively move towards it. Allowing these experiences of expression, imagination and collectivity, CREW promises a unique and effective form of empowerment in line with ‘psychologies of liberation’ (Baro, 1994) – which contributes to both individual and social wellbeing (Kagan et al, 2011).

Further, by making a space for service providers and community members to reflect on and connect with experiences of distress and madness, CREW offers an alternative to mainstream mental health campaigns. Feeling discomfort and safety are a necessary pathway for sustained personal and social change (Lorde, 1984; Anzaldúa, 1987). The capacity of the showcases to gently nudge and stretch emotional boundaries in a supportive setting suggests that CREW is striking a complex and powerful balance for affecting how people relate to distress and madness.

There is a growing body of evidence that anti[1]discrimination campaigns centring on a medical model actually increase stigma and social exclusion (Read et al, 2006). In contrast CREW enables a form of public engagement that decentres pathology and recentres community, creativity and healing. Simultaneously respecting the strength, contribution and humanity of people’s experiences, this potential to challenge discrimination also alleviates the suffering associated with distress and madness (Cromby and Harper, 2009). In addition, by explicitly valuing an ‘outsider’ status – both for participants and for the programme itself – CREW welcomes the contributions of diversity and marginality (Hooks, 1994), reframing efforts for ‘inclusion’ toward not simply transforming individuals but transforming society.

In sum, by making a space for participants to experience expression, imagination and collectivity, and for service providers and community members to experience and appreciate community, creativity and healing, CREW is an empowering, destigmatising and transformative programme with the potential to make a remarkable therapeutic and social impact. It is highly distinct from other clinical services. Like the participants, service providers and community members quoted above, we therefore strongly recommend that CREW be resourced to continue and to expand. However in doing so we acknowledge that the potency of CREW comes from its capacity to be responsive and participatory, as well as its capacity to create reflections on existing knowledge and services. This is nourished by the programme’s own status as an ‘outsider’ to existing institutions. Any attempts to grow it must respect and sustain this dynamism by respecting and sustaining its independence and authenticity. CREW needs to be able to continue to walk the talk about ‘the beauty of being an “outsider”’

Following more than 50 years of scholarship and activism, including by people with a psychiatric diagnosis and/or using psychiatric services, we choose to use the words ‘distress’ and ‘madness’ in order to interrupt the dominance of the medical model (including its associated inaccuracies and injustices) and witness the politics of both people’s experiences and psychiatric interventions.

References

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